Other Resources

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If you are aware of any others, please contact us via our contact us page or email us at info@mecdisabilities.org. Inclusion on this list is for information purposes and does not constitute an endorsement by MEC Disabilities.

ADA Links:

https://www.ada.gov/law-and-regs/ada/#subchapter-ii---public-services-title-ii

https://www.ada.gov/resources/protecting-parent-rights/

https://www.ada.gov/topics/parental-rights/

https://www.ada.gov/topics/child-care-centers/#:~:text=A%20child%20with%20a%20disability,care%20programs%20for%20all%20children.

Administration on Intellectual and Developmental Disabilities

1825 K St NW

Suite 1200

National Autism Resource & Information Center

Washington, District of Columbia 20006

Phone: (202) 600-3480

Phone: (202) 401-4634

Email: info@autismnow.org

https://autismnow.org/about-us/about-the-administration-on-intellectual-and-developmental-disabilities/external link(opens in new window)

The major goal of the Developmental Disabilities Programs of the ADD is to partner with State governments, local communities, and the private sector to ensure that individuals with developmental disabilities and their families participate in the design of -- and have access to -- culturally competent services, support, and other assistance and opportunities that promote independence, productivity, and inclusion in the community. The programs address all facets of the life cycle: diagnosis, early intervention, therapy, education, training, employment, and community living and leisure activities.

ARCH National Respite Network and Resource Center

4016 Oxford Street

Annandale, Virginia 22003

Phone: (703) 256-2084

https://archrespite.org/external link(opens in new window)

https://archrespite.org/contact-usexternal link(opens in new window)

The mission of the ARCH National Respite Network and Resource Center is to assist and promote the development of quality respite and crisis care programs; to help families locate respite and crisis care services in their communities; and to serve as a strong voice for respite in all forums.

Association for Successful Parenting

PO Box 3502

Baltimore, Maryland 21214

Toll-Free: (800) 599-8810

Email: info@achancetoparent.net

https://achancetoparent.net/external link(opens in new window)

A nonprofit dedicated to enhancing the lives of parents living with learning difficulties and their families. It brings together researchers, practitioners, and self-advocates to build the capacity of communities and families to support and improve outcomes for parents with intellectual disabilities. The association’s work mainly centers around education, advocacy at the local and national level, direct support for parents and professionals, and resource sharing.

Association of Administrators of the Interstate Compact on Adoption and Medical Assistance (AAICAMA)

727 15th St NW

Suite 1200

Washington, District of Columbia 20005

Phone: (202) 403-7937

Email: smccartney@aaicama.org

https://aaicama.org/cms/external link(opens in new window)

The Association of Administrators of the Interstate Compact on Adoption and Medical Assistance facilitates the administration of the ICAMA. The Compact is the legal mechanism by which member States regulate and coordinate the interstate delivery of services to children with special needs who are adopted pursuant to adoption assistance agreements. The Association provides technical and legal assistance, education and training, and materials on practice and policy issues.

Association of University Centers on Disabilities

1100 Wayne Avenue

Suite 1000

Silver Spring, Maryland 20910

Phone: (301) 588-8252

Fax: (301) 588-2842

Email: aucdinfo@aucd.org

https://www.aucd.org//template/index.cfmexternal link(opens in new window)

The Association of University Centers on Disabilities (formerly the American Association of University Affiliated Programs for Persons with Developmental Disabilities) promotes and supports the national interdisciplinary network of university centers on disabilities. The network includes University Centers for Excellence in Developmental Disabilities Education, Research, and Service (UCEDD), Leadership Education in Neurodevelopmental and Related Disabilities (LEND) programs, and Intellectual and Developmental Disability Research Centers (DDRC). Through its members, AUCD serves as a resource for local, State, national, and international agencies, organizations, and policy makers concerned about individuals with developmental and other disabilities and their families.

Autism Speaks

1 East 33rd Street

4th Floor

New York, New York 10016

Toll-Free: (888) 288-4762

Email: familyservices@autismspeaks.org

https://www.autismspeaks.org/external link(opens in new window)

Autism Speaks is dedicated to promoting solutions, across the spectrum and throughout the life span, for the needs of individuals with autism and their families through advocacy and support; increasing understanding and acceptance of people with autism spectrum disorder; and advancing research into causes and better interventions for autism spectrum disorder and related conditions.

Center for Advanced Studies in Child Welfare

University of Minnesota School of Social Work

205 Peters Hall, 1404 Gortner Avenue

St. Paul, Minnesota 55108

Phone: (612) 624-4231

Toll-Free: (800) 779-8636

Fax: (612) 624-3744

Email: cascw@umn.edu

https://cascw.umn.edu/external link(opens in new window)

https://www.cascw.org/contact-us/external link(opens in new window)

General Scope: The Center for Advanced Studies in Child Welfare (CASCW) was established with Federal Title IV-E funding and a grant from the Bush Foundation. The goals of the CASCW include preparing graduate students to work in public social services; providing practitioners, policy makers, researchers, and educators with timely information and resources to strengthen the child welfare system's capacity to respond effectively to the families who use its services; and enhancing child welfare training.

Center for Health Care Strategies, Inc.

200 American Metro Boulevard

Suite 119

Hamilton, New Jersey 08619

Phone: (609) 528-8400

Fax: (609) 586-3679

Email: programs@chcs.org

http://www.chcs.orgexternal link(opens in new window)

The Center for Health Care Strategies (CHCS) is a health policy resource center dedicated to improving health care quality for low-income children and adults, people with chronic illnesses and disabilities, frail elders, and racially and ethnically diverse populations experiencing disparities in care.

Child Welfare Information Gateway

Children's Bureau/ACYF

330 C Street, S.W

Washington, District of Columbia 20201

Toll-Free: (800) 394-3366

Email: info@childwelfare.gov

https://www.childwelfare.gov/

Child Welfare Information Gateway connects professionals and the general public to information and resources targeted to the safety, permanency, and well-being of children and families. A service of the Children's Bureau, Administration for Children and Families, U.S. Department of Health and Human Services, Child Welfare Information Gateway provides access to programs, research, laws and policies, training resources, statistics, and much more.

Children and Adults with Attention Deficit/Hyperactivity Disorder

4221 Forbes Blvd

Suite 270

Lanham, Maryland 20706

Phone: (301) 306-7070

Toll-Free: (800) 233-4050

Fax: (301) 306-7090

http://www.chadd.org/external link(opens in new window)

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD) is a national, non-profit, organization providing education, advocacy and support for individuals with ADHD. In addition, CHADD also publishes a variety of printed materials to keep members and professionals current on research advances, medications and treatments affecting individuals with ADHD.

Dove

PO Box 150449

Denver, Colorado 80215

Phone: (303) 831-7932

Phone: (303) 831-7874

Fax: (303) 831-4092

TTY: (303) 831-7932

Email: office@deafdove.org

http://www.deafdove.orgexternal link(opens in new window)

Dove is an organization dedicated to providing services to Deaf, Hard of Hearing, Late-Deafened and Deaf-Blind victims of sexual assault and domestic violence. Dove's purpose is to provide free services and education to Deaf victims, victim service providers and the general public. Reach a DOVE advocate 24/7 via its 24 Hour Crisis Line (303-831-7874) or email: Hotline@deafdove.org

Families & Communities Rising

800 Eastowne Drive

Suite 105

Chapel Hill, North Carolina 27514

Phone: (919) 490-5577

Fax: (919) 490-4905

https://fcrinc.org/external link(opens in new window)

https://fcrinc.org/contact/external link(opens in new window)

Families & Communities Rising, formerly Chapel Hill Training Outreach Project, is a Durham, North Carolina based nonprofit organization with locations in Durham, Orange and Chatham Counties of NC and programs that reach nationwide. FCR is a national provider of training and technical assistance services, audiovisual and print materials, and offers direct services to children, families and communities.

Family Voices

PO Box 37188

Albuquerque, New Mexico 87176

Phone: (505) 872-4774

Toll-Free: (888) 835-5669

Fax: (505) 872-4780

http://www.familyvoices.org/external link(opens in new window)

http://www.familyvoices.org/contactexternal link(opens in new window)

Family Voices is a national, nonprofit, family-led organization with the mission to support advanced health-care programs for all children and youth, particularly those with special health-care needs. Partnering with family leaders and professionals at the local, State, regional, and national levels since 1992, Family Voices focuses on enhancing health-care programs and policies and ensuring that health-care systems integrate the voices of families.

FASD United

PO Box 251

Mclean, Virginia 22101

Phone: (202) 785-4585

Toll-Free: (800) 663-0327

Fax: (202) 466-6456

https://fasdunited.org/external link(opens in new window)

https://fasdunited.org/contact-us/external link(opens in new window)

FASD United, formerly the National Organization on Fetal Alcohol Syndrome, is dedicated to eliminating birth defects caused by alcohol consumption during pregnancy and to improving the quality of life for those affected by fetal alcohol syndrome/fetal alcohol effect. FASD United is committed to raising public awareness of fetal alcohol syndrome and to developing and implementing innovative ideas in prevention, intervention, education, and advocacy in communities nationwide. NOFAS also operates a national clearinghouse for regional, State, and local fetal alcohol syndrome organizations.

Global Hydranencephaly Foundation

PO Box 1150

Silverdale, Washington 98383

Phone: (573) 280-2412

Email: President@GHF.LIFE

https://www.hydranencephalyfoundation.org/external link(opens in new window)

https://www.hydranencephalyfoundation.org/contactexternal link(opens in new window)

The Global Hydranencephaly Foundation provides individualized family support and advocacy services to families across the globe who have a member with hydranencephaly.

Hands and Voices

PO Box 3093

Boulder, Colorado 80307

Phone: (303) 492-6283

Toll-Free: (866) 422-0422

Email: parentadvocate@handsandvoices.org

http://www.handsandvoices.org/index.htmexternal link(opens in new window)

Hands & Voices is a nationwide organization dedicated to supporting families and their children who are deaf or hard of hearing, as well as the professionals who serve them.

Little People of America Adoption Committee

617 Broadway

#518

Sonoma, California 95476

Phone: (714) 368-3689

Toll-Free: (888) LPA-2001

Email: lp_adoption@yahoo.com

https://www.lpaonline.org/external link(opens in new window)

The purpose of the Little People of America Adoption Committee (LPA) is to find a loving home for every dwarf child. The role of LPA is to act as a link between prospective parents and adoption agencies that represent dwarf children. LPA is not an adoption agency, but a referral source only. By outreaching to adoption agencies, doctors, hospitals, geneticists, and others, LPA is are able to locate available dwarf children for adoption and prospective parents who are interested in adopting them.

National Center on Secondary Education and Transition

150 Pillsbury Drive SE

6 Pattee Hall

Institute on Community Integration/University of Minnesota

Minneapolis, Minnesota 55455

Phone: (612) 624-2097

Fax: (612) 624-9344

Email: ncset@umn.edu

http://www.ncset.org/default.aspexternal link(opens in new window)

The National Center on Secondary Education and Transition (NCSET) coordinates national resources, offers technical assistance, and disseminates information related to secondary education and transition for youth with disabilities in order to create opportunities for youth to achieve successful futures.

National Council on Disability

1331 F Street, NW

Suite 850

Washington, District of Columbia 20004

Phone: (202) 272-2004

Fax: (202) 272-2022

TTY: (202) 272-2074

Email: ncd@ncd.gov

http://www.ncd.gov/

The National Council on Disability (NCD) is an independent Federal agency making recommendations to the President and Congress to enhance the quality of life for all Americans with disabilities and their families. NCD works to promote policies, programs, practices, and procedures that guarantee equal opportunity for all individuals with disabilities, regardless of the nature or severity of the disability; and to empower individuals with disabilities to achieve economic self-sufficiency, independent living, and inclusion and integration into all aspects of society.

PACER Center, Inc.

8161 Normandale Boulevard

Bloomington, Minnesota 55437

Phone: (952) 838-9000

Toll-Free: (800) 537-2237

Fax: (952) 838-0199

http://www.pacer.org/external link(opens in new window)

PACER Center, Inc. provides information, training, and assistance to parents of children and young adults with all disabilities; physical, learning, cognitive, emotional, and health. Its mission is to improve and expand opportunities that enhance the quality of life for children and youth with disabilities and their families.

Parent to Parent

https://www.p2pusa.org/external link(opens in new window)

https://www.p2pusa.org/contacts/external link(opens in new window)

Parent to Parent supports a national network of programs to ensure access to quality emotional support for families of individuals with disabilities and/or special health care needs.

Partnership for People with Disabilities

700 East Franklin Street, 1st Floor Box 843020

Suite 140

Richmond, Virginia 23219

Phone: (804) 828-3876

TDD: (800) 828-1120

Fax: (804) 828-0042

Email: jmhall2@vcu.edu

https://partnership.vcu.edu/external link(opens in new window)

General Scope: The Partnership for People with Disabilities, formerly known as the Virginia Institute for Developmental Disabilities (VIDD), is recognized by the Federal Administration on Intellectual and Developmental Disabilities (AIDD) as a university center for excellence in developmental disabilities. The Partnership currently operates more than 20 Federal and State programs, supporting individuals with disabilities and their families.

SAMHSA Fetal Alcohol Spectrum Disorders Center for Excellence

5600 Fishers Lane

Rockville, Maryland 20857

Phone: (877) 726-4727

Email: SAMHSAInfo@samhsa.hhs.gov

https://store.samhsa.gov/product/TIP-58-Addressing-Fetal-Alcohol-Spectrum-Disorders-FASD-/SMA13-4803

https://www.samhsa.gov/about-us/contact-us

The mission of the Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence is to facilitate the development and improvement of FASD prevention, treatment, and care systems in the United States by providing national leadership and facilitating collaboration in the field.

The FASD Center is a Federal initiative of the Substance Abuse and Mental Health Services Administration (SAMHSA), U. S. Department of Health and Human Services (HHS).

Social Security Administration

2100 M Street NW

Washington, District of Columbia 20037

Toll-Free: (800) 772 1213

https://www.ssa.gov/benefits/ssi/

The Supplemental Security Income (SSI) program provides monthly payments to adults and children with a disability or blindness and who have income and resources below specified amounts.

The Arc

1825 K Street NW

Suite 1200

Washington, District of Columbia 20006

Phone: (202) 534-3700

Toll-Free: (800) 433-5255

Fax: (202) 534-3731

Email: info@thearc.org

http://www.thearc.orgexternal link(opens in new window)

The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.

To locate an Arc chapter in or near your community, please see http://www.thearc.org/page.aspx?pid=2437.external link(opens in new window)

The National Center for Disability and Pregnancy Research

415 South Street, MS 035

Brandeis University

Waltham, Massachusetts 02453

Email: disability-pregnancy@brandeis.edu

https://heller.brandeis.edu/disability-and-pregnancy/external link(opens in new window)

The National Center for Disability and Pregnancy Research conducts multidisciplinary research, training, and education on reproduction, pregnancy, and disability, including reproductive health, sex education, prenatal health, childbirth, and more.

The National Down Syndrome Adoption Network

Phone: (513) 709-1751

https://www.ndsan.org/external link(opens in new window)

https://www.ndsan.org/about-us/contact-us/external link(opens in new window)

The mission of the National Down Syndrome Adoption Network is to ensure that every child born with Down syndrome has the opportunity to grow up in a loving family.

The National Research Center for Parents With Disabilities

415 South Street, MS 035

Brandeis University

Waltham, Massachusetts 02453

Phone: (781) 736-8415

Email: centerforparents@brandeis.edu

https://heller.brandeis.edu/parents-with-disabilities/external link(opens in new window)

The National Research Center for Parents With Disabilities conducts research and provides training and technical assistance to improve the lives of parents with disabilities and their families.

The Special Interest Research Group on Parents and Parenting With Intellectual Disabilities

Email: office@iassidd.org

https://iassidd.org/sirgs/parenting-with-intellectual-disabilities/external link(opens in new window)

The Special Interest Research Group on Parents and Parenting With Intellectual Disabilities (SIRG/PID) is the first and only world-wide group dedicated to the scientific study of intellectual disability. SIRG/PID is a scientific and interdisciplinary nongovernmental organization that promotes worldwide research and exchange of information on intellectual disabilities.

Through the Looking Glass

3075 Adeline St.

Suite 120

Berkeley, California 94703

Phone: (510) 848-1112

Toll-Free: (800) 644-2666

Fax: (510) 848-4445

TTY: (510) 848-1005

http://www.lookingglass.org/homeexternal link(opens in new window)

Through the Looking Glass (TLG) is a nationally recognized center that offers research, training, and services for families in which a child, parent or grandparent has a disability or medical issue. TLG is funded in part by the National Institute on Disability and Rehabilation Research (NIDRR), U.S. Department of Education. TLG was awarded a grant by the NIDRR to continue its work through the National Center for Parents With Disabilities and Their Families. The National Center continues TLG's overall mission of empowering parents and potential parents with disabilities by disseminating disability-appropriate information regarding parenting to parents, disability advocates, and legal, medical, intervention and social services providers.

It's not easy traveling with children. But we will be posting some great tools and equipment that can help make it easier especially for those with children who have special needs. We see you, and we hear you. 

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Your children don't have to miss out because of a disability, let us help you get the adaptive equipment you need to help your child be included.